tag:blogger.com,1999:blog-9875218.post1844086636917040955..comments2023-10-25T07:35:16.501-04:00Comments on Elizabeth Ann: Face RealityUnknownnoreply@blogger.comBlogger9125tag:blogger.com,1999:blog-9875218.post-64380118482084954182009-07-01T00:16:41.567-04:002009-07-01T00:16:41.567-04:00There is a lot to be said for expectations - if yo...There is a lot to be said for expectations - if you set a goal for you and your child with the full <br />expectation that it will be met and the enthusiasm that touches others you make the job easier to reach. Forget about comparisons with other parents or kids. There is no future in it. Children and adults learn best in a loving,stress free (as much as possible)atmosphere.<br /> When life is an adventure you are free to explore your surroundings and just soak it all in...Barbara from Bostonnoreply@blogger.comtag:blogger.com,1999:blog-9875218.post-55468186875735432972009-07-01T00:16:40.793-04:002009-07-01T00:16:40.793-04:00There is a lot to be said for expectations - if yo...There is a lot to be said for expectations - if you set a goal for you and your child with the full <br />expectation that it will be met and the enthusiasm that touches others you make the job easier to reach. Forget about comparisons with other parents or kids. There is no future in it. Children and adults learn best in a loving,stress free (as much as possible)atmosphere.<br /> When life is an adventure you are free to explore your surroundings and just soak it all in...Barbara from Bostonnoreply@blogger.comtag:blogger.com,1999:blog-9875218.post-60627596741422999722009-06-30T11:46:14.396-04:002009-06-30T11:46:14.396-04:00Well said! I often feel Nathan is pushed to the s...Well said! I often feel Nathan is pushed to the side by the system. He maybe gets PT twice a month if we are lucky. Ridiculous! I guess they feel there isn't much else they can do for him. <br /><br />I am hoping to get him into some other programs now that we are settled in the new house and things have calmed down a bit.Melissahttps://www.blogger.com/profile/10471411747937230715noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-13383047683609294002009-06-30T09:44:50.266-04:002009-06-30T09:44:50.266-04:00Wow! That is a shocking comment by the team that ...Wow! That is a shocking comment by the team that is supposed to help Elizabeth. It is exactly this type of thinking that has me very scared about the health care changes we are embarking on in our nation. Will our children still receive aid from health care to pay for therapy if they consider the children "incurable?" It's a real fear I have and I suspect many of us have. I plan to discuss this with my representatives in Washington. I will even ask Joe Biden since he hails from our great state of DE (where I currently live).<br /><br />As for why ASD has so much funding, I wonder if it is due to the great efforts of the parents pulling together and lobbying for the money/effort? I think those of us with children with developmental/physical delays have so many different challenges that perhaps we haven't pulled together enough to get the spotlight shone on our children? I'd love to hear your thoughts on this as it's just something I"ve been thinking about lately.<br /><br />KristinaKristinahttps://www.blogger.com/profile/13259709507156454270noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-81057517890511395952009-06-30T01:30:07.848-04:002009-06-30T01:30:07.848-04:00You know I agree with everything you said here. I...You know I agree with everything you said here. I see Hallie's therapy in much the same way as you see Elizabeth's. Sharon and I have a mantra about wanting to help Hallie be the best possible Hallie she can be, and that hard work is paying off, as is yours with Elizabeth. One has to wonder what all of these so-called experts would do if they walked a mile (or a foot/meter) in our shoes.abbyhttps://www.blogger.com/profile/03403145277760263562noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-70970884129157923612009-06-29T23:16:50.492-04:002009-06-29T23:16:50.492-04:00What an amazing post. I couldn't agree more wi...What an amazing post. I couldn't agree more with every single thing you said.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-66802099804092871962009-06-29T15:21:33.080-04:002009-06-29T15:21:33.080-04:00Just because these guys have certain "letters...Just because these guys have certain "letters" in front of their names, doesn't mean their right. Just keep doing what you have always done.<br /><br />Elizabeth has come so far and it's not because of what they have done, it's what YOU have done.Miracleshttps://www.blogger.com/profile/02443177533757861274noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-72370209236448960672009-06-29T09:00:31.125-04:002009-06-29T09:00:31.125-04:00Ouch! That post took my breath away. I wonder wh...Ouch! That post took my breath away. I wonder why? Am I still looking for a cure?Jacolynhttps://www.blogger.com/profile/14966291460929695590noreply@blogger.comtag:blogger.com,1999:blog-9875218.post-11039662723271006322009-06-26T23:23:51.405-04:002009-06-26T23:23:51.405-04:00Yes that comment does hurt and there is so much ho...Yes that comment does hurt and there is so much hope. <br /><br />If you haven't read this book "The Brian that changes itself" by Norman Doidge the book talks about leading edge therapies and how the brain can respond with the kind of stimulation. The author is from UofT so there is a number of Canadian stories. The stories are all so hopefully and inspiring. I loved it. The author could have included a whole chapter on CME.Sherry Chttps://www.blogger.com/profile/17320106277509509294noreply@blogger.com