The time has flown by only the last few days Elizabeth started to become homesick. We are so amazed at how hard she worked with Ramon, she really made us proud with her determination. The last few days of therapy were videotaped and a home program was made for us to do at home. Ramon recommends 30 minutes a day of the exercises, it seems like such a small price to pay for being more independent. Dad has his work cut out as he needs to make all the boxes, planks and boards for her exercises and he will be doing most of the exercises with her while I spot. The only downside is that 2 of us need to be there during her exercise in order to ensure her safety and most of the exercises require strength that I do not have.
We still see her swaying and unsteadiness with walking but she is falling less and can step on or over obstacles without holding on to our hands. She walked independently up a small flight of stairs yesterday and that is something I would not have even imagined her achieving for at least a year. We also noticed less hyperextension of her knees as well and she now bends it when she walks.
It really was an honor to have Ramon work with Elizabeth. Ramon is such a humble man who is so inspired by children with disabilities, he believes in them and their potential. Therapists from USA and Canada took time off and flew in just to watch him practice. He has had many criticisms about his methods but I do believe without his boxes, planks and as he says 'ooky whooky' exercises Elizabeth would not be doing what she is today.
Once she succeeds with the current program we will meet with Ramon or his colleague again to develop the next program, between that time we will have to look into fundraising as this is an expensive venture. Any ideas?
4 comments:
YAY!!!!! your home. Elizabeth is so determined that it doesn't surprise me at all at how well she has done with this therapy.I will do some thinking about raising some funds for her next therapy sessions. The only thing that comes to mind right now would be a walk called "Elizabeth Walks" with t-shirts and all!!
I am glad you made it home safely. I look at the pics of Elizabeth and so wish Nathan and I could have joined you. I think he would really benefit from the therapy.
I am thinking of having a dance (jack and Jill type thing) to raise some funds for Nathan. It is so hard to come up with ideas.
I'm so glad that you already see improvements, that's awesome! Walking up stairs unassisted is HUGE for a kid w/balance issues way to go ( Kellar has to hold onto something and even then he tends to lean backwards). I wish it was something that we could afford to take Kellar to. Give Elizabeth a high five from Kellar for doing such a great job!
Wow, I want to go to see this guy!! You should be so happy. She is doing so well. Good luck and keep up the good work!
Janette
Mom to Kelly
and the other fabulous 4
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