That is how Elizabeth described the pain in her knee the other night. That night was one of the worst; she was crying, gagging and screaming out 'momma they are biting fast'. It was one of the nights where the only way I can get her to settle is to rub her knee until she falls asleep (after motrin, heating pad and rubbing cream).
We did see the Orthopedic surgeon and he had ruled out a knee injury and growing pains as it is localized. The surgeon's input was 'it must be behavioral, she should not be getting that much Motrin' needless to say I was very upset after seeing him if he knew us at all he would realize that this is not behavioural and that I have gone to great lengths to ensure that this does not turn in to a behavior issue.
The reality is Elizabeth has pain that no one can really figure out and no one can really give us options to prevent this pain. Elizabeth is right now out with the neighbourhood kids and her Dad and has been out for a couple of hours which means that tonight she will be in agony. Do I bring her in to avoid her pain getting worse or do I hope that in time she will get stronger and this will get better? I can't see how this can get better as each time she grows it starts up again as she becomes more unstable and hyperextends more. It really is a vicious cycle we want her to be active but at the same time we want her comfortable. Until then we might buy shares of Motrin.
6 comments:
Poor thing...I know it must be so frustrating for you to not be able to do much for her! It must be agonizing....
Poor little one...and how frustating that must be for you all. Could it be some nerve damage in the area? Our little kiddos have had so many procedures and pokes that it wouldn't amaze me if she had disrupted nerve ends in that area and that's why she has pain. I am not sure what they would use to prevent it, but it's just a suggestion. Who knows, maybe you all have thought of that already.
I am so sad to read this, A. No ortho diagnosis? No brace or exercise prescription? Behavioral?! Is there any chance for a second opinion? Barbara
I can't believe that doctor and poor Elizabeth. I hope you find some better answers. Ashley had a bit of a rough day yesterday too and I also pulled out the motrin. thank god for motrin
Oh, that sounds awful and I agree with Barbara that it seems like something should be able to help her, some way to protect her knees. Maybe worth looking into a 2nd opinion. Poor kiddo. Poor Mommy.
I'm thinking Kellar hurts at times at night as well and it seems to be when he's played hard. I asked our dr about restless leg and if this was possible in a child, but honestly Kellar will move his legs and arms and cry in his sleep and as he's doing this it's like it's impossible for him to stay in one position long enough to really get good and asleep, he doesn't really wake up it's just a tiring process of watching him whine and toss and turn. I end up giving him motrin too. So sorry that Elizabeths been hurting, hopefully you'll find answers soon.
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