I couldn't have said it any better

November is Prematurity Awareness month and Anne a very dedicated Mom to Eliza who was also born too early sums it up click here to read her post.
Elizabeth will be 6 years old next month and still her prematurity continues to affect her and will unfortunately affect her throughout her life, it has also affected our family in so many ways. The mantra 'they will catch up by 2' will never be her case and not for many other babies born early and the Health Professionals giving this message give false hopes and do not prepare parents for the difficulties they will face.
Living in Canada has allowed us to access top notch medical care and not to have to worry about mounting medical bills. We are so thankful for the amazing care she received in the NICU and we attribute her daily successes to the care she received.
I would love to be able to do something for the NICU that Elizabeth spent her first months in but each year I find the running to and from appointments has not slowed for us and free time continues to be at a minimum. I have an idea and I hope it will work out so stay tuned.
Thank you to Anne for your honesty, it reminds us that we are not alone.