Tuesday, March 10, 2009
The Reflux Front
We found this picture the other day and had a good laugh, she was so darn cute. Reflux is still an issue here and it is beyond the point of her growing out of it as promised by her Dr's. We met with a new GI Dr. who actually listened to my concerns. We have changed her medication to Prevacid which comes in pill form, this makes things so much easier as her last med was compounded monthly by the pharmacy and had to be kept cool which made travelling more tricky and the monthly dispensing fees are gone as well. The Dr. would have liked to try her on a motility agent but because of her irregular heartrate she cannot be placed on one which leads us to the only real option Fundoplication. As most CP/Preemie Mom's know a Fundo is not an option, to surgically tie her stomach to prevent her from vomiting is not an option for us, she has not had regular bouts of pneumonia to make us think she is aspirating. The Prevacid initially calmed her stomach but now she is spending a lot of her nights gagging and retching in her sleep, I am often in her room repositioning her uphill and on her stomach but she slides down and gags and retches. She even vomited in her sleep one night and I didn't even notice until the morning which is scary. So we are back to the drawing board and have changed her meal times, eliminated her nighttime glass of milk and avoid all fatty foods in the pm. I know if we go back to the Dr. it will be to increase her meds again and a talk about a Fundo so we will try Mommy's way for a bit. One really good thing is that she has only vomited twice this year which is a total record for her.