Thursday, November 29, 2007

Secret Spy Elizabeth

Getting Sassy

Elizabeth: Chicken, broccoli and rice not again!!!!

Mom: That is what is for dinner.

Elizabeth: I hate broccoli, I hate chicken and I hate rice! I am not eating.

Mom: Do you need a time out?

Elizabeth: Yes, I need a time out!

After a brief time out of singing in the corner, Elizabeth joined me at the table and picked at her dinner. I have heard that 3 is worse than 2, I think it might be true.

Saturday, November 17, 2007


Rough Week

The grace period of no major illnesses since Elizabeth started school is past. Elizabeth began to run fevers at the beginning of the week and began to get a cold. Of course for Elizabeth getting a cold is never the standard course of a runny nose. Vomiting/choking is still an issue with Elizabeth and when she is sick it becomes even more prevalent. Her vomiting/choking has led her to vomit out her nose repeatedly which has led to aspiration, poor kid even the next day I find remainders of her dinner in her nose. Elizabeth with puffers and antibiotics has began to improve but still continues to vomit a the slightest thing because of this and her earlier weight loss we have put her on supplements. I am so afraid to see what her current weight is, even if she does eat she just vomits it up with the slightest cough. We were able to call her ENT and he has agreed to see her next week at Sick Kids, hopefully he can speed up her swallowing study which will hopefully tell us why she chokes so often.
To top everything off Elizabeth has another urinary tract infection the last one being in September. Because of the close proximity of the 2 infections she will be sent to a urologist and will have a VCUG. A VCUG involves catheterizing her and filling her bladder while she is partially sedated which is not something we want to put her through.
As she is not at her best her walking is so unsteady she is falling everywhere and needs us to be there at all times. Every time she gets sick she becomes so unsteady and falls so behind and also misses so much therapy.
A huge thank you to Grandma this week for helping watch Elizabeth while Mommy and Daddy work. Without Grams Mommy would not be able to work.
Despite being sick Elizabeth is happy and taking advantage of the fact thatwe are letting her watch a more TV than usual.

Monday, November 12, 2007

New Belt

We have given Elizabeth the belt! No she is not in trouble but she is now sporting a 2lb weighted belt. We have been trying various ways to help with her balance and provide support, including theratogs and the benix vest and have found the added weights provide some stability. Sitting at an unsupported chair is becoming difficult and Elizabeth fidgets, sways and wiggles until she ends up standing by the table to do fine motor activities. With the belt on, she has been able to sit on her little chair for prolonged periods and can use her hands better as she is not trying to balance herself all the time. The difference is really remarkable.
With walking the belt seems to keep her grounded and more stable. The belt is only worn for short intervals to avoid extra strain on joints. Elizabeth calls her belt her 'secret agent spy belt' (Backyardigans) and thinks it is a great addition to her wardrobe.

Friday, November 02, 2007

Triple threat...

With so many choices, it was hard for Elizabeth to make up her mind what to be this Halloween. So, she was a ladybug, a cat and batman this year. The batman costume was actually a loner from Owen (Elizabeth says Thanks! and promises to give it back).
In the last photo, the three little goblins (Owen, Elizabeth and cousin Madison) are gearing up to go out and get some sugar.