We are now officially booked to take Elizabeth for Medek. It is a trip that makes Disney look truly cheap but we hope it will pay off. We are booked for 12 days of twice daily sessions with Ramon Cuevas. We have done Medek in the past with a close colleague of his and do continue with the exercises at home. We are hoping that spending time with Ramon will teach us more exercises to do with Elizabeth and will give her a bit more stability with her walking. Elizabeth's walking has greatly improved and she is now beginning to step onto raised surfaces and is falling less but we have to be continuously at her side ready to catch her. We know that Elizabeth's walking will never be the same as her peers and that Ramon cannot cure her but we are hopeful he can help.
Elizabeth is now old enough to be in kindergarten but for many reason we are holding her back. Her safety in school is a big concern for me and I fear that once in school they will demand she use a walker for safety. A walker is not a huge deal but she chose to walk independently and I want to honour it. I have horrifying visions of her on the playground, being knocked over and breaking something and I know chances are it will happen, a change in wind is enough to tip her over. I know that the assistants will not stay by her side in the playground and she will be encouraged to play away from all the kids to avoid injury. I know this as I visit many schools through work and see it all the time.
We have been warned and discouraged by some not to do this type of therapy but we are willing to give it a try. We have met Ramon and he is kind and gentle with the children, Elizabeth immediately took to him and wanted to do more work on his boxes. Just mentioning this therapy to some of Elizabeth's Dr's would spark a very heated discussion but we know Elizabeth and if it is too much for her we will stop. Elizabeth's emotional state is more important to us than her mobility. We will spend our time not in therapy doing as many fun things that we can come up with so she will look back at this as a fun time as well as hard work.
To see a video of Ramon click here.